
CLARYVILLE, N.Y. (AP) — Autoimmune diseases like lupus, myositis and forms of arthritis can strike children, too. At a sleepaway camp in upstate New York, some young patients got a chance to just be kids.
That’s how a 12-year-old recently diagnosed with lupus found himself laughing on a high-ropes course as fellow campers hoisted him into the air.
“It’s really fun,” said Dylan Aristy Mota, thrilled he was offered this rite of childhood along with the reassurance that doctors were on site. If “anything else pops up, they can catch it faster than if we had to wait til we got home.”
Autoimmune diseases occur when your immune system attacks your body instead of protecting it. With the exception of Type 1 diabetes, they’re more rare in kids than adults.
“It’s very important that people know that these diseases exist and it can happen in kids and it can cause significant disabilities,” said Dr. Natalia Vasquez-Canizares, a pediatric rheumatologist at Children’s Hospital at Montefiore in New York.
When symptoms begin early in life, especially before puberty, they can be more severe. Treating growing bodies also is challenging.
Montefiore partnered with Frost Valley YMCA to bring several children with autoimmune diseases to a traditional sleepaway camp, after reassuring parents that doctors would be on hand to ensure the kids take their medicines and to handle any symptom flares.
“Their disease impacts how they can participate and a lot of the time the parents are just very nervous to send them to a summer camp,” Vasquez-Canizares said.
Ethan Blanchfield-Killeen, 11, has a form of juvenile idiopathic arthritis, causing joint pain and stiffness and “my legs get, like, sleepy.”
But at camp, Ethan said he’s mostly forgetting his illness. “The only time I get pain is like when I’m on long walks, my legs start getting stiff, and then I kind of feel pain, like achy.”
One day a doctor examined his hands at camp. Another day, he was running across the lawn splattered in a fierce game of paint tag.
“It’s really nice just doing the special activities and just messing around with your friends and all day just having a blast.”
To the doctor, forgetting their chronic disease for a little bit was the point.
“They blend perfectly with the other kids,” Vasquez-Canizares said. “You can just see them smiling, running, like any other normal child.”
___
Neergaard reported from Washington.
___
The Associated Press Health and Science Department receives support from the Howard Hughes Medical Institute’s Department of Science Education and the Robert Wood Johnson Foundation. The AP is solely responsible for all content.
___
This is a documentary photo story curated by AP photo editors.
LATEST POSTS
- 1
‘We are the alternative’: Anti-Hamas Gaza militia tells BBC group is receiving international support - 2
'Set up an Army Radio station at President’s Residence': Source close to Katz slams Herzog - 3
Baby takes 1st steps after receiving groundbreaking gene-edited therapy - 4
Exploring the Mind boggling Universe of Connections: Individual Bits of knowledge - 5
This ‘CSI: Miami’ star spent years solving crimes on TV. Then she became the target of one herself.
Vote in favor of your #1 Kind of Cap
Jeff Bezos’ Blue Origin launches landmark Mars mission in New Glenn rocket’s first big test
10 Asian Countries Perfect for Solo Female Travelers
Fundamental Home Machines for Improved Solace in Summer
Americans generally like wolves − except when we’re reminded of our politics
Novo and Lilly cut prices of weight-loss drugs in China
Struggling to keep your New Year's resolutions? Here's how to keep yourself on track
Most loved Caf\u00e9 Chain: Where Do You Get Your Caffeine Fix
Vote in favor of the wide open action that revives your brain and soul!













